An 11-year-old boy who was born with a rare orthopedic condition that constantly causes him pain will see his wish to have his leg amputated granted.
Amit Vigoda, who was born in Israel and moved to San Francisco 18 months ago, is due to have his below-the-knee amputation on April 10 at Shriner’s Hospital for Children in Sacramento, Calif., Britain’s Daily Mail reported on Monday. Six weeks later he will be fitted for a prosthetic leg and within three months, he hopes to be living a “richer life.”
“This spring, I will take a huge step in this journey and amputate my right foot,” Vigoda wrote on his blog. “This will allow me to live a much richer life and be more active and do more of what I love – soccer, running, biking, swimming and so on.”
Vigoda was born with congenital pseudoarthrosis of tibia and fibula with osteofibrous dysplasia, which causes his right leg to continually fracture. He is in constant pain and can only walk with crutches, hop on one foot or crawl, the Daily Mail said. Doctors diagnosed Vigoda with the condition when he was born with a broken leg.
“I can tell you now that I am scared. This whole thing is freaking me out,” he said about the upcoming procedure. “I will probably not be as polite, or charismatic as I would like to appear but I promise you this – I will be candid and I will be real.”
Vigoda has had multiple surgeries aimed at correcting the problem, his mother, Zimra Vigoda, said. The boy has internal rods and an “external fixation,” which includes rods, nuts and bolts that were fitted through the child’s bone, muscle and tissue. The solution lasted only a year before Vigoda’s leg fractured again.
His pain is so excruciating at times that he wakes up in the middle of the night and screams for his mother.
“I awake to a familiar screech. ‘Mommmmmyyyy……HELP!’ So begins my biweekly sleep-run to my 11-year-old’s bedside,” Zimra Vigoda, who has three other children, wrote on her own blog. “‘Mommmmmyyyy……I want to cut it off, I can’t stand it anymore…I hate my leg… make it stop,’ he hollers, eyes wide open yet not quite awake.”
Opting for an amputation was a decision the Vigoda family reached together. Zimra said, “Amit has chosen this route and his father and I, along with our family and friends, will be there with him.”
After his operation, Vigoda will return to playing wheelchair basketball, which his mother describes as the most important thing in his life.